Misdiagnosing Has To Stop

Everyone knows I am an avid supporter of Celiac Disease Research and that I am very involved in a major project to gain government support for the only auto-immune disease which the government does not support. Why? Because the drug companies and pharmacies do not make money off of this disease because the simple solution is to abstain from the gluten in their diet. 

Please sign up for my Newsletter (click on link and scroll down the right side of the page) to stay on top of this.  The “project” details will be fully released by the end of October.

Click here to watch a  7-minute video interview with Dr Peter Green, the doctor I am 100% behind and will be on some radio interviews with across the world over the next many months! He is a delight and is the  TOP doctor truly helping strongly to encourage celiac awareness in the USA. Listen to him and his simplicity. I think you will agree he is wonderful man with a heart of gold to help. He too agrees many kids in the USA should NOT be on drugs and are terribly misdiagnosed! He is the Head of the Celiac Disease Center at Columbia University. 

Let’s raise awareness about the overwhelming amount of misdiagnosed and long undiagnosed children  and adults. Let’s get the word out about the effects celiac disease has on 1 out of every 100 person in the USA! Connect up with me and I will share with you what is happening to help this area. 

Again, watch this video and get yourself informed in just 7 minutes by an amazing man I respect with all my heart. Dr. Green has devoted his life to opening the eyes of Americans and intends to continue to raise awareness. He is CORRECTLY diagnosing an average of 2,400 people per year as he continues to research this disease and facts of gluten. 

Please ask any of your friends or associates who may be interested in this field to connect up with me. I have had 7 radio interviews on this subject alone in the past 2 months and scheduling an average of 2 per week at this point in time, and this is increasing.

Side Note: Pamela’s Products sponsors my monthly Gluten-Free cupcake party videos. This month we have one scheduled in Tampa Bay, Florida. If you are interested, just let us know. Space is limited.  This month’s theme will be Thanksgiving for the kids and families! FUN! All gluten-free of course. This too is to raise awareness for this disease and all videos promoted broadly.  

Thank you,

Tina Turbin

From our home to yours, Miranda Jade.


About Us

I'm a cookbook-collecting, recipe-developing paleo junkie, and I live in the kitchen. I'm hooked on farmers' markets, traveling, eating healthy, and hiking until my legs scream at me. There's nothing better than hanging out with family and good friends. I have fun and sleeping is just plain boring. Read more About Tina Turbin.


9 thoughts on “Misdiagnosing Has To Stop

  1. Pingback: Tweets that mention Misdiagnosing Has To Stop | Gluten Free Help -- Topsy.com
  2. I watched this interview and couldn’t BELIEVE how widespread this disease is. So glad you are providing GF advice and help! I’m not GF but my sister was just diagnosed with celiac disease and recently switched to a GF diet, and she made this AMAZING frittata for dinner and I was like, “Where did you get that???” She sent me the link to the recipes on your site and I can’t wait to try them! Thanks for everything you’re doing out there! Misdiagnosing really MUST end!

  3. I agree—and I am so glad there is a project to get the attention of Govt and hopefully more doctors. Part of the misdiagnosis is due in part to the unreliability of blood tests and the “old” standard of the biopsy. Tests like Enterolab (and I have no affiliation with them) need to be taken seriously by medical personnel. My family does have Celiac per Enterolab—-and taking gluten out of our diets was an almost overnight miracle in relieving symptoms. But a recent phone conversation with Dr. Fasano in which I said we had Celiac per Enterolab and his response that that is not a valid test so we don’t have a ‘real’ diagnosis was disheartening….to say the least. More inclusive standards for diagnosis, along with more sensitive comprehensive testing AND Dr.’s accepting that there is a Spectrum of Celiac/Gluten Intolerance the same as Autism Spectrum—-and we will be making impressive progress in this country regarding diagnosis!

    Thanks for a great blog 🙂

    Katie

  4. Tina,
    Our plans are to keep doing what we are doing, which is avoiding pretty much
    all packaged GF foods, except for companies that are committed to making
    sure their products are clean from planting to production! Obviously, our
    GF results speak volumes all on their own. We used Enterolab, and the
    results we got from them are the results we believe—that my husband,
    daughter and I have a DQ8 gene and our son has a DQ1 gene. Even though the
    mainstream Celiac research centers won’t recognize Dr. Fine’s testing and
    results yet—we definitely, definitely have Celiac disease. Our daughter
    started with Prometheus labs, and her results suggested that HLA testing
    would tell us whether she actually had Celiac or not as her results were
    consistent with Celiac. My husband’s Prometheus results were 100% negative
    (according to them). But of course, Enterolab told a different
    story—which eating Gluten Free clarified. I guess the thing that really
    bothers me about the whole Biopsy is the Only True Diagnosis thing is that
    my kids bleed profusely and spontaneously when they ingest gluten. It’s one
    of the first hallmark symptoms of contamination, along with extreme
    crankiness. Dr. Fasano actually said he had never heard of this, except
    after months and months of contamination! My friend whose kids react the
    EXACT SAME WAY to gluten (which is how we became friends in the first place)
    just shook her head. It seems even the Celiac Docs don’t want to really
    listen.

    So—sorry to barf all over you here. But I feel a LARGE part of the
    misdiagnosis and no-diagnosis is the fact that there is SO little
    communication among perhaps Dr.s and patients as far as TRUE modern-day,
    industrialized world symptoms. Dr. Green says that the presentation in
    America is so NOT emaciation and diarrhea and this is a big reason Dr’s are
    missing it—-there is such a spectrum of symptoms. Apparently, Dr. Fine
    will be presenting what he needs to to get his test validated in December.
    If this proves to be what he needs to do to impress the Egos that Be in the
    Medical Community—then my Mother in Law recent comment about our
    ridiculous test where we “shit in a box and send it off to Texas” will be
    eaten by HER! 🙂

    Katie

  5. Tina,

    I am in Idaho—and yes, I am a full-time, homeschooling mom 🙂 I’m jealous
    you will get to speak with Dr. Green. I saw an interview he did with CNN and was
    really impressed with his views of Celiac in the USA.

    I am VERY interested in being part of anything to do with raising awareness
    about Celiac, raising awareness IN the Celiac community and especially in
    making moves or changes that help ALL of us—-and not just the Celiac’s
    that fit in that nice neat box of symptoms and Biopsy diagnosis. No
    offense, but the whole picture of Celiac needs to be presented to Dr.s and
    organizations and new guidelines for not only diagnosis need to be adopted
    that includes ranges of symptoms and response to the GF diet—-but this
    also needs to extend to food manufacturers that think it is okay to let a
    little bit of gluten in GF foods. I hear in Australia they have real, 100%
    GF foods that have 0 Gluten in them—and then a Gluten-Lite designation for
    foods that have up to let’s say 20ppm gluten. This makes me really mad, as
    our own FDA with Celiac Dr.’s support is going ot allow up to 20ppm gluten
    in GF foods.

    So if there is anything I can do to be a mover and shaker in this—-I’m in!

    Katie

  6. 50. Thanks , I have recently been looking for info about this subject for a while and yours is the best I have found out till now. But, what about the conclusion? Are you sure concerning the source?

Leave a Reply

Your email address will not be published. Required fields are marked *