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Tuesday, December 20th, 2011

How You Can Help Send Children To A Gluten-Free Summer Camp?

There’s an age-old saying that, in my opinion, has never been more true…“It’s better to give than to receive.” The holiday season is the perfect time for you to give back to the community.

The spirit of the giving season, I want to bring your attention to a fundraiser I’m helping promote this week for a great gluten-free cause. This week only, giving just $2 of your hard-earned money will go toward providing scholarships for children to attend a gluten-free summer camp hosted by the Celiac Disease Foundation (CDF) next summer in Southern California.

But this week, donating $2 doesn’t mean you’re just donating $2…This week through Sunday, December 25, Gluten-Free Saver has partnered with Van’s Natural Foods to raise money to send children to next summer’s CDF-sponsored summer camp, and Van’s is matching all donations up to $1,000! The goal is to raise $2,000 – and when you donate $2, you’re really contributing $4. You can read more about the fundraiser here: www.glutenfreesaver.com.

The summer camp will be held in San Bernardino in Southern California from July 30 to August 3, 2012, and it’s open to all 7-15 year old gluten intolerant and gluten-sensitive children – not just those diagnosed with celiac disease.

Sure, receiving gifts this time of year is always fun, but the feeling of knowing that your generous donation of just $2 can bring a tremendous amount of joy to a young child… well, now that’s priceless.

Please help reach the goal of donating $2,000 to the Celiac Disease Foundation this week. Every $2 helps. YES! I want to help send a child to a gluten-free summer camp and donate $2 right now!

P.S. 100% of all donations will go directly to CDF.

P.P.S. If you’re feeling extra generous this holiday season, you aren’t limited to donating just $2 – you can give as much money as your heart desires!

Miranda Jade

GlutenFreeHelp.info

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Wednesday, October 5th, 2011

U.S. Has Yet to Define “Gluten-Free” for Food Labels

Because even the tiniest amount of gluten can make celiacs ill, reading labels in selecting gluten-free foods is one of the necessary skills celiac patients should acquire right at the start of their gluten-free diet. However, it isn’t enough for celiacs to look for a “gluten-free” label to stay safe in the U.S. Although proposals for gluten-free labeling laws are in the works, currently there is no official definition in this country for “gluten-free.”

According to Living Without, neither of the two major food government agencies, the U.S. Department of Agriculture, which regulates egg, meat, and poultry products, nor the FDA, which oversees packaged and other foods, have a specific definition for “gluten free.” As it stands, the FDA’s standard for gluten-free labeling is that the label be “truthful and not misleading.” This means that if a food is supposed to be “free” of an ingredient, it shouldn’t have that ingredient in it.

Unfortunately, this standard isn’t workable when it comes to gluten-free products. Whereas other products which claim to be “free” of substances such as caffeine or sodium can be confirmed with testing to indeed have zero of these substances, Living Without reports that the technology for testing for zero gluten isn’t yet developed, according to attorney Andrea Levario, who is the executive director o the American celiac Disease Alliance (ACDA).

As it stands, gluten is tested in parts per million (ppm) and the smallest detectable amount is presently 20 ppm. According to Living Without, celiac experts are in agreement that this is a safe amount for celiacs to ingest. However, other countries define “gluten-free” as having below 20 ppm.

According to AmericanCeliac.org, the Food Allergen Labeling and Consumer Protection Act 0f 2004 (FALCPA) has required the FDA to formulate voluntary gluten-free labeling laws. The website provides a series of questions and answers from the FDA regarding the current proposals, which were developed in 2006. These current proposals require that the gluten content be less than 20 ppm and that the product itself can’t have 20 ppm or more of gluten, due to the limitations in the current analytic technology.

According to Living Without, “With the number of products making unregulated gluten-free claims on the rise, the marketplace can be potentially dangerous for consumers with gluten sensitivity and wheat allergy.” Recognizing this fact, the American Celiac Disease Alliance is clarifying the proposed gluten-free labeling regulations on its website, www.AmericanCeliac.org.

Before this labeling regulation can be put into effect, according to Celiac.com, the FDA needs to make another draft of the proposal public, gather and consider the commentary generated from the new draft, and then publish a notice regarding the safety assessment. “The FDA will likely publish the notice on the safety assessment soon,” Celiac.com reports, but there is no indication as to just when they will issue the final rule. With “gluten-free” labeling on the rise, it seems more crucial than ever to get these regulations passed with a clear definition for “gluten free.”

Tina Turbin

www.GlutenFreeHelp.Info

k.m.

Resources:

American Celiac Disease Alliance: Gluten-Free Labeling Proposed Rule http://americanceliac.org/food-industry/gf-labeling/

Celiac.com: FDA Set to Adopt New Gluten-Free Labeling Standards In-Line with New Codex Alimentarius Standards http://www.celiac.com/articles/21617/1/-FDA-Set-to-Adopt-New-Gluten-Free-Labeling-Standards-In-Line-with-New-Codex-Alimentarius-Standards/Page1.html

Diet.com: Contamination of Naturally Gluten-Free Grains   http://new.diet.com/blogs/read/contamination-of-naturally-glutenfree-grains/19524

“GF Product CLAIMS: Can You Trust Them?” Living Without: April/May 2010.

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Sunday, September 25th, 2011

Understanding the FDA’s Gluten-Free Labeling Proposal: Check out This Website!

I’m sure you’ve heard the great news: the Food and Drug Administration (FDA) has finally published its proposal for gluten-free labeling requirements and is accepting comments from consumers through October 3, 2011.

Now that the proposal has been published, it’s time for the celiac community to take the critical step of providing feedback to the FDA. In order to assist gluten-free consumers with this task, the Celiac Disease Foundation and American Celiac Disease Alliance, with the help of notable experts, have set up an informative website (www.1in133.org) with resources on the proposed guidelines and even a Gluten-Free Labeling Proposal Letter to which consumers can add their signature.

According to the Celiac Disease Foundation, “Many individuals want to comment on the proposal but may not be sure of what to write or how to frame their comments or perhaps find it complicated to navigate through the process.”

The Frequently Asked Questions page is informative and easy to understand, and the proposed letter is cogent and well-analyzed. Check it out and let your voice be heard!

http://1in133.org/proposal

Tina Turbin

www.GlutenFreeHelp.info

 

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Friday, September 2nd, 2011

Medications: The Next Arena for Gluten Labeling Measures

In my work as an author, researcher, and gluten-free advocate, I work hard to help the gluten-sensitive and celiac communities live a healthy, balanced lifestyle, free from the threat of gluten ingestion. Over the past several years, I am grateful to have witnessed a marked increase in gluten-free awareness and celiac disease research, with many benefits for gluten-free consumers, such as gluten labeling laws, more companies devoted to manufacturing gluten-free alternatives, and helpful online resources. Nevertheless, there is one arena that needs to be addressed—gluten labeling requirements of  medications. As it stands, the FDA hasn’t implemented any such requirements, putting celiac patients at risk.

It’s estimated that three million Americans have celiac disease, an autoimmune reaction to gluten, a protein found in wheat, barley, and rye. Genetic in origin, the disease works by attacking the absorptive fingers which line the small intestines, called villi, damaging them so that vital nutrients can’t be absorbed. What results is a wide variety of painful physical and mental symptoms, such as chronic diarrhea, chronic exhaustion, stomach problems, and migraines. Even though prescription and over-the-counter drugs can contain this ingredient that can make 1 in 100 Americans seriously ill, no clear gluten labeling laws exist, a fact which NFCA (the National Foundation for Celiac Awareness) is working hard to remedy.

The FDA has already launched a Safe Use Initiative, in which the FDA “seeks to partner and collaborate with relevant stakeholders to measurably reduce preventable harm from medications, thereby improving patient health,” according to the FDA’s website. Alice Best, Founder and President of NFCA, and Loretta Jay, M.A., the Director of Program Development, have teamed together to get the FDA to expand the initiative’s scope on behalf of the celiac community. “The Safe Use Initiative’s emphasis on informational errors makes this project particularly important to people with celiac disease and gluten sensitivity,” they wrote to the FDA.

According to Best and Jay, without labeling requirements for medications, “although few medications do contain gluten, every medication must be investigated to verify its gluten-free status.” The current situation requires that pharmacists and patients contact the pharmaceutical manufacturers themselves to inquire about gluten content. “Answers are not available after regular business hours, and sometimes manufacturers are not prepared with the responses when contacted during the day,” Best and Jay write. Furthermore, this information can change easily as pharmaceuticals are manufactured differently. Whereas time-consuming research can be inconvenient for celiac patients when it comes to food products, it can be a health-threatening matter when dealing with medication.

Clearly, this lack of gluten labeling requirements can put celiac patients at risk and result in what Best and Jay call “the almost certain potential for error and consequent grave harm to the celiac and gluten sensitive patient population.” Thankfully, we have the NFCA working on our behalf. In the meantime, celiac patients and pharmacists will have to continue their diligent research on their own. “It will be a long road,” Jay says, but with perseverance I think we can look forward to future gluten labeling on our medications.

 

Tina Turbin

www.GlutenFreeHelp.info

k.m.

Resources:

FDA: FDA’s Safe Use Initiative http://www.fda.gov/downloads/Drugs/DrugSafety/UCM188961.pdf

Regulations.gov: National Foundation for Celiac Awareness (NFCA)  http://www.regulations.gov/search/Regs/home.html#documentDetail?R=0900006480b0e253

 

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Tuesday, May 11th, 2010

Saturday May 15th, Los Angeles- Celiac Disease Fdn. Education Conference and Food Fair!

Saturday, May 15  8:00a to 4:00p at the Marriott Los Angeles Downtown, Los Angeles, CA   Phone: (818) 990-2354
Celiac Disease expert Peter H.R. Green, MD and gluten-free diet expert Shelley Case, RD will be speaking among others.
Celiac Disease Foundation  ( www.celiac.org) Annual Education Conference and Food Fair is for people of all ages who have celiac disease/dermatitis herpetiformis or who care about someone who does. This is a very educational experinec and I highly recommend that you attend if you can.

The Conference will provide opportunities for people to share and learn more about celiac disease and the gluten free lifestyle from experts. You will hear, see taste and experience quite a lot. You will not walk away displeased.

Over 50 vendors will showcase their gluten-free foods.

Again, Celiac Disease expert Peter H.R. Green, MD is flying in from New York and gluten-free diet expert Shelley Case, RD will be speaking among others. I am looking forward to seeing them both and many others. Read about her fabulous book, the Comprehensive resource Guide here.

Tina Turbin

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  • Tina Turbin

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    Tina Turbin became extremely interested and involved in the subjects of gluten free, gluten sensitive and celiac disease a number of years ago as a result of...

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