Beth Hillson is a name you hear often in the gluten-free community. When I was sent her new gluten-free cookbook to review I was very excited. Who exactly is this gluten-free master Beth Hillson? That’s the exact thought I had. Before reading Beth’s cookbook ” Gluten-Free Makeovers” I got to get a few of my questions answered about Beth.

Read below for the interview and stay tuned for the review in two weeks!

When were you diagnosed with celiac disease?

I was diagnosed in 1953 and again in 1976.  I was a small child when I was diagnosed the first time.  They took away all my food and fed me bananas for several weeks, or maybe it was months.  Gradually, my mother introduced new foods – - leaving starches including corn, rice and potatoes – - until the very last.  I was on this diet for 3 ½ years.  When everything was added back, the doctor told me I was cured.  No one mentioned the word, “gluten.”   When symptoms returned,  I went from doctor to doctor complaining about my stomach.   Each one diagnosed me with a different ailment – - “nervous stomach,” psychiatric problems, lactose intolerance, and IBS.  It took several years and a second biopsy before I was rediagnosed with celiac disease.  This time the doctor knew that gluten was causing the problem but he didn’t fully understand the diet.  Corn Flakes and Rice Krispies were on the list of foods I could eat.  He even told me that beer was fine.  So I educated myself.  I went to culinary school to understand how foods are prepared and how to replace the gluten in the recipes.  It was my only choice unless I wanted to eat baked potatoes and naked burgers for the rest of my life.

What was the hardest part for you switching over to being gluten-free?

There was nothing available by way of products or resources when I was diagnosed.  My cravings motivated me to teach myself how to cook and bake gluten-free.  If I wanted a cake, I had to recreate it with gluten-free ingredients.  But I always viewed this as a challenge rather than a liability.  A positive attitude and a good support system turned this from a dire prognosis to a culinary adventure.   It’s a journey I’ve been on ever since.

How has the gluten-free community changed since you were diagnosed with celiac disease?

We’ve gone from zero to sixty miles an hour in this industry since I was diagnosed.  I can’t even begin to describe all the changes.  But here’s an example.  When I created Gluten-Free Pantry in 1993, we were still thinking that 1 in 1,000 people had celiac disease.  The possibility that many others had gluten sensitivity was not even in the picture.  I often said I could stand on the street corner in Manhattan with a plate of my Chocolate Truffle Brownies and never come across another celiac, even if I stood there for a full day.  Today, I can’t go anywhere without running into half a dozen people with celiac disease and another dozen who are gluten intolerant.

You took the gluten-free world by storm, baking out of your own home and evolving into a successful business. Tell us in your own words what this whole process was like for you.

I guess I was a pioneer.  The business came out of a need.   I was making baking mixes so I could quickly whip up a bread or pancakes or a quick bread when I wanted something good to eat.  (After all, freshly baked has always been the way to go.)  Then it occurred to me that I could save some money on ingredients if I bought a 50 pound bag of rice flour.  Once it arrived, I knew I had to find a few other people to share the mixes with or I would never use up all that flour.  I had no idea the business would take off the way it did.  For the first three years, I was working night and day just to keep up with demand.  I couldn’t imagine marketing my products proactively.  The company was growing more than 30% per year just by word of mouth.  That’s amazing when you’re a little business.

What was your purpose in selling your first gluten-free company?

I became disheartened when so many entrepreneurs began copying my products.  Mix companies were showing up everywhere.  There must be over a hundred of them today and each one has a sandwich bread, a pizza mix, a brownie, a cupcake, and so on.  They all  claim they started the business because there was nothing good out there.  But honestly, there are plenty of great mixes now.  When I started Gluten-Free Pantry there truly was nothing else available for gluten-free consumers.   I wish people would copy the pioneering spirit instead of copying each other and create products that are a unique and fill a void in our lives.

When I created the company, I was a lifeline for our customers.  The first time we moved to a larger location, the phone lines were down for nearly a day and people freaked out, fearing we had gone out of business!  I’ll never forget when a customer called the local police to check on us and someone came to find me.  I had that kind of connection to our customers and I felt I had a commitment to help them live well on a gluten-free diet.  But, by the time I sold the company, I did not feel that way.  I knew our customers had other choices.  I didn’t feel like I was letting people down.

What did you do with your “free time” after that?

I spent time with my elderly parents until they passed away.  Then I went back to school to get an MFA in creative writing and wrote a memoir as my thesis.  It’s still in process, but I hope to publish it one day soon.  And then I wrote a cookbook, “Gluten-Free Makeovers.”

On your website, glutenfreemakeovers.com, you have a section called “baking basics” where you help many people who are having trouble baking gluten-free. You must enjoy helping others be successfully gluten-free in their own kitchens. What inspired you to start glutenfreemakeovers.com?

I think “makeover” is my mantra.  I have always looked at ways to recreate favorite foods so we can enjoy them.  It was the concept that led me to create the GF Pantry and the recipes in the cookbook and on the web site.  I really do enjoy helping people.  This is a challenging lifestyle, but not impossible, especially with all the variety these days.  As long as people view this as a challenge and understand the rewards are delicious, safe foods, they will happily embrace the gluten-free lifestyle.  I can’t begin to describe the feeling I get when I see someone smile because they baked something delicious or tried something yummy that I fed them.  This is as good as it gets.

You have quite a record of cooking and baking. Was this something you always had an interest in?

Coming from a childhood where I ate bananas seven different ways, I have always been hungry for good food and great variety.  I think that childhood experience heightened my culinary curiosity.  When I was a kid, I trolled the neighborhood looking for handouts, for things that were not allowed on my diet.   I visited my friends’ homes and checked out their refrigerators.  I asked the mothers what they were serving for dinner and hinted boldly that I might like a taste.  I bought candy at the penny candy stores in my neighborhood.  (Sugar was another thing I couldn’t have.)  Food became intensely interesting to me.  That hungry still persists.

You recently published a gluten-free cook book “Gluten-Free Makeovers” published by Da Capo Press . What inspired you to do so?

I have gathered so many great recipes since I started Gluten-Free Pantry and then after selling it and writing recipes and articles for Living Without Magazine.  I wanted a place to organize them.  And, frankly, they are good recipes.  I wanted others to enjoy them, too.  By the way, I cook from my own cookbook all the time and so does my sister who was diagnosed with celiac disease seven years ago.

How did you choose which delicious recipes would be included in your cook book versus those which would not be?

I picked recipes that filled a void – - favorite family traditional dishes, wonderful cakes and cookies that I thought we should all have.  After I set up an outline and chapters, some of the recipes had to be shelved.  I had way too many.  But that’s good news.  Now I have enough material for another book someday.  In addition, people are always sending me their recipes to make over.  That’s fun, too.

You have come up with so many gluten-free recipes, any plans on another cook book in the future?

Perhaps I will do another cookbook.  I think the big deterrent is that there are so many cookbooks out now.

Anything else you want to share?

Lots of people are intimidated by gluten-free cooking and overwhelmed by the diet and lifestyle.  I encourage people to give it a try and not be discouraged.  Take baby steps at first.  By that I mean start with a couple of mixes from a company you’ve heard about and trust.  Become accustomed to the way gluten-free flours handle and branch out slowly.  Find a cookbook (hopefully mine!) and try one or two recipes just to get started baking from scratch.  Next thing you know, you’ll be making your own flour blends and making over mainstream recipes just like I do.  Just keep a positive attitude.

Miranda Jade Turbin

www.GlutenFreeHelp.info

Dr. Wakefield’s work has been discredited over the past several years, and ten of the eleven doctors who were involved in the study have removed their names from it. The Sunday Times reports that Dr. Wakefield “changed and misreported results” in his research, according to “confidential” medical documents and interview with witnesses.

Dr. Wakefield’s study was published in February 1998 in The Lancet medical journal, causing widespread concern among parents that the MMR vaccine—for measles, mumps, and rubella—was linked to autism. According to The Sunday Times, the impact of the article was “extraordinary,” with vaccination rates decreasing from 92% to less than 80%, while “herd immunity” from measles occurs when 95% of the population has been vaccinated.

After a British journalist, Brian Deer, published the results of his investigation calling Wakefield’s study an “elaborate fraud,” Wakefield denied these allegations as false in an interview on CNN with Anderson Cooper. Wakefield continues to stand by his findings, saying that the results have been replicated in studies in five other countries and that Deer has received financial support from a pharmaceutical company. Check out the link below to see the interview yourself.

CNN Video Clip

Tina Turbin

www.GlutenFreeHelp.info

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According to the Canadian Celiac Association, DH is “a blistering, intensely itchy skin rash.” It’s usually symmetrical in shape and is most commonly located on the elbows, knees, buttocks, and upper back. According to the American Osteopathic College of Dermatology (AOCD), people can experience the rash on other parts of the body and severity can vary.

Celiac patients with DH also often experience mild or no gastrointestinal issues, although villous atrophy (damage to the villi of the lining in the small intestine) will most often be present.

The AOCD describes the basic DH cycle, which usually consists of a burning feeling on the affected area, followed by water blisters which tend to get scratched off, followed by scabbing and healing, which takes one to two weeks, then a new outbreak of these bumps or blisters. According to the AOCD, “DH is a lifelong condition, but remission may occur in 10 to 20 percent of patients.”

For a diagnosis, usually a skin biopsy is performed and sometimes some blood testing. And the treatment? The gluten-free diet, of course, although drug options are also available to suppress symptoms.

With an increase in awareness about DH among the public as well as in the medical community, we can look forward to a higher diagnosis rate and better long-term health among celiacs.

Tina Turbin
www.GlutenFreeHelp.info

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Dermatitis Herpetiformis (DH) is “a blistering, intensely itchy skin rash.” It’s usually symmetrical in shape and is most commonly located on the elbows, knees, buttocks, and upper back. People can experience the rash on other parts of the body, and severity of symptoms can vary.

I unfortunately not only have celiac disease but also have DH. Staying off of gluten really is the only lasting solution for DH. I do my best to stay away from gluten but with a busy life and sometimes eating on the go I occasionally consume gluten unknowingly.

Recently I had a DH outbreak that was probably one of the worst I have ever had. Many small patches all over my back and one right in the middle of my chest. No only was it embarrassing but also extremely uncomfortable.

I knew I needed to find a solution for future if I ever accidently consumed gluten. I first tried using cortisol cream for the itching. It did help a little with the pain but it didn’t help the blisters go away. A few of the blisters opened up and were extremely painful so I thought to put Neosporin on them. It once again helped with the pain but they were not going away.

At this point I was stuck to wearing very covering clothes and putting band aids over the open blisters. Being only 22 years old this was even more devastating. I had to turn down social events due to the DH.

I did some research and my mother, Tina Turbin, put out a message on the celiac listserv to see if we could come up with any solutions. The feedback we got was absolutely amazing. So many people had the same problem as me and had solutions. I felt a sense of relief.

I decided to get a prescription for Dapsone seeing as it seamed to me to be the best fit. Although Dapsone is a very strong drug and should be used sparingly I figured it was the perfect match for me because it is quick acting and I don’t eat gluten purposely ever so I knew I wouldn’t have to use it often at all. I like to keep things natural as much as possible in my life so this was important for me.

I got my little jar of Dapsone cream and followed the directions exactly. Two times a day I applied a thin layer to the areas of the DH outbreak.  Not only did it relieve the pain but within 3 days of using it I saw a huge change in the appearance of the DH. I only used it for at total of 5 days because I wanted my body to be able to fight the DH on its own as much as possible. The DH is almost gone now and I am not getting any more outbreaks whereas before it was as if it was spreading all over me.

I know there are many people with Celiac disease who have DH. I hope my story helps you or someone you know. I am going to go eat some gluten free cake now!

Miranda Jade Turbin

http://www.GlutenFreeHelp.info

With regard to genetics, the CCA points out that more than 97% of celiac patients have the genetic markers HLA DQ2 and/or HLA DQ8. Celiac disease is now known to be a hereditary disease. The CCA tells us that “first-degree and to a lesser extent second-degree relatives are at higher risk of having unrecognized celiac disease.”

Next, is the environmental “trigger,” as Dr. Alessio Fasano, professor of pediatrics, medicine and physiology at the Center for Celiac Research at the University of Maryland School of Medicine, calls it. This is gluten, a protein found in wheat, barley, and rye.

According to the Canadian Celiac Association, sometimes severe physical stressors can also trigger the immunologic reaction to gluten that is characteristic to celiac disease. Such sources of stress include pregnancy, infection, surgery, or even severe emotional stress.

In his article, “Surprises from Celiac Disease,” published in Scientific American, Dr. Fasano describes a different triad of factors involved in the pathogenesis of the disease. The first two factors are the ‘’trigger” of gluten, which sets off the immune response, and the genetic predisposition, as previously described. Fasano proposes that “other genes are likely to be involved as well, but these additional culprits may differ from person to person.”

The third factor, according to Fasano’s research is an “unusually permeable gut.” Fasano’s research regarding this third factor of pathogenesis offers hope of new prevention and treatment methods. He says, “Treatments that reduced leakiness could potentially ease not only celiac disease but also other autoimmune disorders involving unusually permeable intestines.”

This research into the leaky gut of celiacs can explain a question that has been perplexing researchers regarding the disease’s pathogenesis: Why do some people not develop celiac disease until later in life? According to Dr. Fasano, this issue could be associated with the microbes in the digestive tract. Should this prove true, we may be able to prevent or treat celiac disease with probiotics.

Miranda Jade Turbin

www.GlutenFreeHelp.info

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According to the Canadian Celiac Association (CCA), this treatment is “a STRICT GLUTEN-FREE DIET FOR LIFE.” DH patients may also use the drug Dapsone to suppress their symptoms.

As the autoimmune reaction of celiac disease is triggered by ingestion of gluten, it’s important to completely eliminate this substance from the diet. This will heal the damage to the small intestine’s villi, the finger-like absorptive fingers that line the wall of this organ, which will  allow patients to better absorb the nutrients in their food and will “reduce the risk of developing many of the complications of untreated celiac disease,” according to the CCA.

The CCA recommends that celiac patients work with a qualified nutritionist who is knowledgeable about celiac disease “for nutrition assessment, education and follow-up.” Also, regular visits with your doctor is recommended as well as participation in a celiac support group.

With an increase in celiac research, we may have other treatment options to look forward to in the future, such as probiotics or gluten-digesting enzymes, but for now going gluten-free is all we have.

Miranda Jade Turbin
http://www.GlutenFreeHelp.info
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The celiac community has seen a surge of helpful resources in the form of eBooks, including Gluten Toxicity: The Mysterious Symptoms of Celiac Disease, Dermatitis Herpetaformis, and Non-Celiac Gluten Intolerance by Shelly Stuart, R.N., B.Sc.N. The book contains 248 pages and 30 chapters of clearly laid-out answers and advice for those with celiac disease, DH (dermatitis herpetaformis), and gluten intolerance.

The eBook offers extensive descriptions of symptoms, breaking them down into numerous categories, and diagnosis and the gluten-free diet are dealt with in detail. What sets the book apart from others is an assortment of topics that Shelly takes up in the latter part. Some chapter titles awaiting you are “Thirty Lifestyle Tips To Help Ease The Transition,” “What If The Gluten-Free Diet Doesn’t Work?”, “Could A Grain-Free, Specific Carbohydrate, Paleolithic, Or Elimination Diet Be Helpful?”, and even “Is A Gluten-Free Or A Grain-Free Diet Healthier For Dogs And Cats?” Shelly even shares not one, not five, but twelve theories of why the prevalence of celiac disease has increased. She even shares a list of “Global GF Bloggers,” listing my website, http://glutenfreehelp.info, under this category.

Shelly suffered the effects of gluten toxicity for many years before she was finally diagnosed with celiac disease. After she was diagnosed, she had her relatives screened, and her mother and one of her three daughters were also diagnosed celiac. Her mission now is to increase celiac awareness. She has created an exemplary eBook as part of this mission, and I highly recommend you avail yourself of it.
http://celiacnurse.com/products-page/e-book/gluten-toxicity-ebook-pdf/

Tina Turbin
www.GlutenFreeHelp.info

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The AOCD describes the basic DH cycle, which usually consists of a burning feeling on the affected area, followed by water blisters which tend to get scratched off, followed by scabbing and healing, which takes one to two weeks, then a new outbreak of these bumps or blisters. According to the AOCD, “DH is a lifelong condition, but remission may occur in 10 to 20 percent of patients.”

Celiac patients with DH also often experience mild or no gastrointestinal issues, although villous atrophy will most often still be present. Some people with DH show the signs of celiac disease, although some people just exhibit DH without the characteristic gut symptoms of celiac disease.

Diagnosis usually requires a skin biopsy and sometimes specific blood tests, and the treatment is the gluten-free diet. Once you’ve completely eliminated gluten from the diet, an alleviation of the rash can take months. Drug treatment can also be used to suppress symptoms. Dapsone can cause an improvement in DH “in days, ” according to the AOCD.

The drug does have side effects, and for this reason, treatment begins with small doses of the drug, gradually increased until the symptoms disappear. Due to the side effects of Dapsone, blood tests will be conducted weekly or bi-weekly for the first three months of treatment. A few other alternative drug treatments are available, such as sulfapyridine and tetracycline, in case Dapsone doesn’t work, although these other drugs aren’t as effective.

Miranda Jade

www.GlutenFreeHelp.info

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Just as with celiac disease, the prescribed treatment is the gluten-free diet. Once you’ve completely eliminated gluten from the diet, an alleviation of the rash can take “months,” says the American Osteopathic College of Dermatology (AOCD).

Additionally, Dapsone can cause an improvement in DH “in days.” The drug does have side effects, and for this reason, treatment begins with small doses of the drug, gradually increased until the symptoms become suppressed.

Due to the side effects of Dapsone, blood tests will be conducted weekly or bi-weekly for the first three months of treatment. According to the AOCD, “There are a few alternative treatments if Dapsone cannot be used (sulfapyridine, tetracycline), however these do not work as well.”

For diagnosis and treatment, you should make an appointment with your doctor as soon as possible.

Miranda Jade
www.GlutenFreeHelp.info

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It’s been over two years since I finally found out what was destroying my body from the inside out. I had a history of stomach problems and when my symptoms became bad enough to feel justified going to the doctor, was told that I had gastritis, which is essentially an enflamed stomach lining. Antacid medications were prescribed and I was sent on my way. The medications seemed to work at first, but eventually my symptoms came back. Each time my “gastritis” came back, it was worse than the time before. I felt bloated, my head hurt, I was nauseous, and my insides felt like they were on fire. My skin also reacted by producing patches of red, itchy, flakiness. Around 2003, the symptoms began to include mind­crushing migraines. To combat the migraines, a neurologist put me on an anti­seizure medication and told me to stop eating yogurt, bananas, chocolate, and to eliminate caffeine from my diet. I did as I was told but my stomach problems and migraines continued.

By the Spring of 2006 my health had deteriorated to the point that my body finally had enough. What felt like another attack of “gastritis” quickly evolved into fever, and sharp, stabbing pains on the right side of my abdomen. I ate antacids like candy to no avail, and had to sleep sitting up otherwise I’d wake up choking on stomach acid. I was admitted into the ER and went through a battery of tests, which indicated inflammation in my stomach (a shocker!) and small intestines. They attributed it to gas, gave me yet another script of antacid medication and sent me on my way. The medications didn’t work at all and I continued to get worse.

By June of 2006 I began to lose weight. In addition to the pain, headaches, nausea, and bloating, I began to experience new and disturbing symptoms. I could no longer look at computer screens without feeling dizzy, and everything that moved produced a visual tail. I started to feel like I was losing my mind, or tripping on some kind of hallucinogen.

Food began to scare me, since many things I ate made my symptoms worse. In the course of three months I dropped from an unhealthy 212 pounds to 165 pounds. I still sought out the help of doctors, now mainly gastroenterologists, who once again put me through a variety of tests. I had an MRI, CAT scan, at least 20 different blood tests, an endoscopy, a colonoscopy, parasite tests, and neurological tests.

Nothing produced answers. Frustrated physicians began to blame me for my symptoms, telling me that I needed to seek the help of a psychiatrist or a counselor. There was nothing more disheartening to be told that all your physical symptoms are in your head, that the pain and discomfort you are feeling are not real. I’ve got to admit that I did a lot of praying during those months.

By the end of October 2006 I began to experience excruciating pain when I had a bowel movement, which was often accompanied by fresh blood. I again returned to the hospital, only to have physicians shove their fingers in my anus, which was extremely painful due to my rectal tearing, as well as a bit embarrassing as I’m sure those of you who’ve had the same procedure know, and told that there was nothing wrong with me. It wasn’t until I brought in a picture of my toilet bowl filled with blood did my gastroenterologist begin to explore possible dietary causes of my symptoms. One of which was a test for gluten­ antibodies. I asked him why and he informed me that I may have something called Celiac Disease. Celiac Disease, he said, was an auto­immune condition created by the body’s inability to digest gluten. Gluten was a protein found in wheat, barley, rye, and possibly oats.

Although my test came back “inconclusive,” I decided to try and avoid eating gluten anyway. What could I lose? I was desperate. I had taken every medication given to me, as well as put myself through a variety of herbal dietary detoxification regimens, and stupidly enough, even fasted. Nothing helped. However when I eliminated gluten, I quickly noticed results. Within three days my rectal bleedingstopped, and in a few weeks I was having pain­free bowel movements! However, gluten had taken its toll on me. When I visited my mother for Christmas of 2006, she began to cry as soon as she saw me. The last time she had seen me I was over 200 pounds, so seeing me at 145 pounds must have been quite a shock! We cried together and I told her not to worry, because I felt that I had finally found out what was killing me. As I avoided gluten my health began to slowly improve.

Once I started researching gluten and Celiac Disease, I found that my negative physiological reactions to non­gluten foods were caused by a condition called “leaky­gut syndrome.” In people with Celiac Disease, gluten creates an auto­immune condition where the body begins to attack the villi (hair­like structures lining the intestines used for moving food particles and facilitating the absorption of nutrients), eventually flattening them. As conditions become worse, the intestines become severely inflamed and eventually begin to tear and create fissures. My intestines had been so damaged by my disease, that large, undigested food particles began seeping through the cracks in my intestinal walls into my blood stream. Once there they were attacked by my immune system and labeled as “intruders.” If you don’t know how the immune system works, once it identifies something as an enemy, that information is communicated to the rest of the body. The result was that I began to have allergic reactions to many of the things I ate, but especially nuts, seeds, and dairy products.

Severely damaged intestines also produce neurological conditions. Not only did I have a hard time looking at computer screens, something of a liability when in graduate school, but when I closed my eyes I saw what looked like strobe­lights flashing in my peripherals. Stores with a lot of visual congestion, like bookstores, made me dizzy. I was also seeing trails. When I moved my arms, even slowly, a visible trail resulted. It was worse with cars, birds, and anything else that moves. But worse than all of that was

the fogginess I felt in my mind. It was so hard to concentrate on anything that I suffered chronic headaches from the strain of trying to focus my attention. To sum it all up, it completely SUCKED!!!

It’s been over two years of healing now and I’m still not feeling as good as I did before I became ill. Some days are much better than others, but in general I always feel a little bit off. However, I feel unbelievably better than I did when things were at their worse, so I’m extremely grateful. I’m sure it took many years to have led to how sick I became, so it will most likely take quite a while to repair the damages. I eventually accepted the reality that there was no magic pill to make me instantly better. I realized that the rest of my life would be somewhat of a dietary challenge, especially when it comes to traveling. But as some wise person once said, what doesn’t kill you makes you stronger. I’m sure as new gluten­free products are introduced and awareness of Celiac Disease increases, living with dietary restrictions such as mine will get easier and easier. I just hope that I’m able to help as many people as I can have an easier time adjusting to gluten­free living.

­Travis Sky Ingersoll

Great Resources and Links:

Check out my Gluten Free Cooking Blog. It has tons of useful information, recipes, product sampling, restaurant reviews, and tips to living a gluten free life. And it’s FREE!

http://www.travsgoneglutenfree.blogspot.com

Here’s my ever-growing list of used and approved Gluten Free cookbooks, GF products, and related products:

Trav’s Gone Gluten Free’s Amazon Store

Helping Hands Books is a social venture aimed at contributing to youth development:

http://www.helpinghandsbookstores.com

Miranda Jade

GlutenFreeHelp.info