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Posts Tagged ‘celiac and children’

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Monday, July 11th, 2011

Five Questions to Find Celiac Disease in Children

 

How can you find out if YOUR child should be tested for celiac disease?

WebMD Health News recently published a questionnaire that you can use to find out if your child has celiac disease and needs to be put on a gluten-free diet. According to the article, at least half of children with celiac disease NEVER get diagnosed, leaving them suffering from the painful physical and mental symptoms of the disease.

Instead of indiscriminately administering a blood test to kids, now we can narrow down the children who need to be tested by asking them five questions:

1. Has your child ever suffered from abdominal pain more than twice during the last three months?

2. Has your child ever had diarrhea lasting more than two weeks?

3. Does your child have a tendency to firm and hard stools?

4. Does your child gain enough weight?

5. Does your child gain enough height?

Check out the link below!

http://tinyurl.com/yl5fgbc

 

Tina Turbin
www.GlutenFreeHelp.info

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Tuesday, November 23rd, 2010

The Top Five Tips on Raising Children with Food Allergies

I meet up with a number of wonderful people as a children’s author and due to being celiac myself this adds a whole new element to my wide range of friends. Jamie Eppenauer has a lot to offer the gluten-free community and I’d like to share some of that with you. Please enjoy what she has to share and I am sure you can learn from this. I did.

 

As a parent of 3 children with food allergies, I am often asked “How do you manage it all?” Here are my Top Five Tips:

Never Let Them See You Cry – Number one and most importantly, never let them see you cry! When our oldest daughter was diagnosed with celiac disease, I was relieved to have a diagnosis but overwhelmed with what seemed like the mountain I had to summit to provide her with safe food.  This was back before Gluten Free had become a household term, but even today navigating the ins and outs of finding safe food can often feel like a part-time job.  Rejoice in the fact that you know what is making your child sick, but then take your private time to grieve.  For me, I spent a day locked away in our guest bedroom, mourning what I perceived to be the loss of our “normal” diet and watching a documentary on the evolution of life.  At the end of my pity party, I emerged from the guest room determined to make the best of our new diet.  I still have moments when I just wish we could go out to eat and order off the menu, but I do not let those moments show.  How can I expect my kid not to have a bad attitude about our diet if I do?  Luckily, this approach has worked so far.  It would be a lie to say that my daughter loves her diet, but she deals with it and does not let it get her down.

Educate, Educate, Educate – Consider yourself enrolled in a Food 101 class to learn about whatever diet restrictions you may have.  The internet is an amazing resource of information.  Perform a simple Bing search with your diet restrictions and you will have more than enough information.  For a list of resources on the gluten free diet, go to GlutenFreeMom/GettingStartedGlutenFree.com In addition, if you are following other specific diet restrictions check out these websites:

www.allergicchild.com

www.peanutallergy.com

www.autismweb.com

Learn to Read Labels – You may have successfully negotiated life without ever reading a food label, but those days are over.  Life will be a little bit easier if your child suffers from one of the top 8 allergens, as the FDA requires food manufacturers to label containers with these ingredients.  Thus, milk, eggs, peanuts, tree nuts (such as almonds, cashews, and walnuts), fish (such as bass, cod, flounder), shellfish (such as crab, lobster, shrimp), soy, and wheat will be labeled.  Unfortunately, it is not as simple as it may sound.  For instance, the parent of a child with a dairy allergy also needs to avoid foods that contain butter, butter fat, butter oil, butter acid, butter ester(s), buttermilk, casein, casein hydrolysate, caseinates, all cheese, cottage cheese, cream, curds, custard, diacetyl ghee, half-and-half, lactalbumin, lactalbumin phosphate, lactoferrin, lactose lactulose, milk (including condensed, derivative, dry, evaporated, goat’s milk and milk from other animals, low-fat, malted, milkfat, nonfat, powder, protein, skimmed, solids, whole), milk protein, hydrolysate pudding, Recaldent®, rennet, casein, sour cream, sour cream solids, sour milk solids tagatose, whey, whey protein, hydrolysate, yogurt.  You get the picture – and the important point is

 

Educating Yourself!  For safe eating, our motto is When in Doubt, Go Without. For more on understanding food labels go  to food allergy.org.

Go Healthy – When first tackling food allergies, you can choose one of two paths – you can spend a lot of time reading labels and searching the web for “safe” allergy friendly food, or you can spend that same time cooking wholesome food for your family that you know is safe.  You will have to find the approach that works for your family, but for us simpler is better. Thus, if something has more than five ingredients and is not clearly labeled, I will not buy it.  I would rather go without than spend all the time it is going to take to find out if it is gluten free.  I have also found that in most instances it is quicker and easier to make it myself and find reassurance in knowing what all of the ingredients are and where they came from.  So instead of searching for a box of processed crackers that are free from all of your allergens, feed your kids an apple smeared with peanut butter (if they can have that) or a slice of cheese.  You will all be better off in the end.

Do Not Stop Living – Some people live to eat – we have learned to eat so we can live.  Eating out, traveling, school, birthday parties, etc., will be little mountains that you will have to summit over and over again.  For us, we would rather go and have to deal with the challenges presented by our special diets than to not go at all.

Bold statements to be sure, having lived with kids with multiple allergies for five years, but I have to admit we did not eat out for the first six months on the gluten free diet.  I just wasn’t prepared enough to handle that yet. The first time we did go out, it was a disaster!  We went to a chain restaurant, during the busy lunch hour, at a very busy mall.  We were not sure what we were doing and our waiter was even worse.  When the food finally did arrive – the burger was on a bun.  We sent it back.  Of course, while we were waiting for the new burger the other kids (who were starving by this time) gobbled all of their lunch and they were more than ready to go by the time the Gluten Free Kid’s burger arrived – then, in tears, she refused to eat the burger.  Just a hunk of hamburger meat was not too appealing to her.  So we went home and cooked lunch.


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It was months before we went out again.  This time we were armed with information, called before we went to confirm they could prepare a GF meal, picked a gluten friendly restaurant, and went before the dinner rush.  Most importantly we had a great time – they were so nice they even gave us complimentary desserts.  No – we do not eat out as much as we used to.  But we have had many terrific gluten free dining out experiences since then and have had friends also successfully prepare us meals in their homes.

Because living with diet restrictions will not stop you from living the life you choose!

Jamie Eppenauer www.glutenfreemom.com

Jamie is a forty-something gluten free mom, cook and blogger currently residing in the beautiful Pacific Northwest with her husband and three children. She is just a Mom who is raising her family and living gluten free. She graduated from the University of Iowa with a degree in Political Science and then from the College of Law, Order of the Coif.  After law school, she moved to Chicago where she married her husband of 15 plus years and practiced law for five years.  They then spent two short years in Kansas City where their first daughter was born. It was not long until Microsoft came knocking on their door, and so the move to Woodinville, WA which is on the Eastside of Seattle.  Their second daughter was born in Seattle, and then they adopted our son from Guatemala.

Their oldest daughter was diagnosed with celiac disease in 2005.  After being on a gluten free diet for a week herself, she suddenly felt better than she had her entire life.  Subsequent tests showed that she carries the gene for celiac disease. Jamie considers herself extremely lucky to be able to stay at home and raise her kids. They are her greatest blessings from God. When she isn’t strolling the aisles of Whole Foods looking for the latest and greatest gluten free item, she enjoys oil painting, running, boating with her family, skiing, reading and hiking.

 

Tina Turbin
www.GlutenFreeHelp.info

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Saturday, August 14th, 2010

What on Earth is Celiac? by Diane Jacobs

 

Author Diane Jacobs is ensuring people become well-informed about “What on Earth is Celiac” through her eBook of the same name.

With a complete, downloadable reference guide containing informative chapters on the history of celiac disease (CD), children with CD, symptoms, and much more, anyone can have the fruits of Diane’s labor, research, and compilation.

It really is a handy guide for newly-diagnosed celiacs and a tool to share with anyone else, even simply as a reference in one’s arsenal of books and data to help one’s own family and friends understand the disease.

You may go to Diane’s site, www.celiacdiseaseinfo.org, to download this 50-page gem. You can also read about the many other wonderful things this oman is doing and her delicious country-style gluten-free cookbook.

Click here to read my enlightening interview with Diane Jacobs.

About Diane: Diane Jacobs was diagnosed in 2003 with celiac disease and has dedicated herself to sharing information about celiac disease and also about the benefits of eating and cooking wheat and gluten free. In 2005, Diane created her own website: http://www.celiacdiseaseinfo.org; in 2006 she self-published her first edition of her Ebook: What on Earth is a Celiac?; in 2008, her cookbook: Delicious! The Very Best of Gluten Free & Wheat Free Cooking, a Homestyle Recipe Collection for Celiacs and Wheat Sensitive Folks” was self-published both at the website and at Amazon.com: http://amzn.com/B002GQ2ZJU.

Then in 2010, she created her food blog: “Gluten Free Foodie Heaven”: http://www.glutenfreefoodieheaven.blogspot.com.

Diane speaks to community groups and organizations about celiac disease and about how to comfortably (and fabulously!) and survive as a person who either is required to or desires to eat gluten and wheat free.  She also makes appearances on TV programs cooking gluten free and has been featured in local newspaper articles as well.

Prescott, Arizona Courier article: March14th, 2010:
http://www.prescottaz.com/main.asp?SectionID=74&SubSectionID=111&TM=69298

Tina Turbin
www.GlutenFreeHelp.info

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Saturday, August 14th, 2010

Up Close and Personal with Public Speaker, Celiac and Author, Diane Jacobs

 

 

Please tell me how you became interested in the area of celiac disease.

I became interested in celiac disease because I became a statistic. Even my gastroenterologist seemed at a loss…calling my diagnosis of this disease “quite rare.”

Did you know anything about this auto-immune disease before you were diagnosed?

Absolutely nothing. It seemed hardly anyone had heard of it.

How long after being off of gluten did you feel a change?

Almost immediately my more severe gastro reactions stopped, however, I remained quite sensitive for several months to other common allergens such as dairy.

Do you have any other auto-immune diseases currently? Yes.

Do you feel they can be attributed to the years of misdiagnosing or not being diagnosed celiac, when in fact you were? Absolutely.

Is there anything you’d like to share with others about this point?

I know a lot of people who are “self-diagnosing”. They have gone off of all gluten, knowing that they DO feel better, however, not knowing for certain if they have a food allergy or are indeed someone with celiac disease. This really concerns me. This is not something to speculate about for several reasons. If you have celiac disease, others in your family probably have it too, and you need to know the facts.

Secondly, we know that celiac disease is commonly seen in conjunction with other autoimmune diseases. People need to have the facts about their health and know what their scenario truly is so that they can adjust their diet accordingly. If I had been more proactive about my health, I wouldn’t be challenged with the degree of autoimmune disease that I am. I have a friend who was diagnosed with celiac about 4 years ago and also has MS. She was not diligent about abstaining from gluten in her diet, and now she has a rare form of rectal cancer (more autoimmune disease!). Celiac can be primary/secondary to other autoimmune conditions.

You have a lovely site www.celaicdiseaseinfo.org. Can you tell us what this site offers to others, please?

My website provides a service for those who are diagnosed celiacs or those who are seeking diagnosis, informs and educates the public about celiac disease, offers my 160 page gluten free & wheat free cookbook, and a 50 page informational e-book download. My website also offers links to my “Gluten Free Foodie Heaven” recipe blog.

What is the mission you want to accomplish through your site?

Initially, in 2005 when I created my website, I was in earnest about folks finding more information about celiac disease. There wasn’t near the information available and “the buzz” in the media that there is currently and I am so thankful that that has changed! Over time, my passion has evolved into two things:

1) I would like to convey to people about what I mentioned earlier, and that is not to speculate about a diagnosis of celiac disease. It’s like holding a gun to your head. My life has undergone a complete 360 degree change since about six years ago…because I became even more ill following the CD diagnosis…and it truly was debilitating. Finally, within the past year or so, the docs figured out what else was going on.  If it hadn’t taken so long to diagnose my CD in the first place, I believe that I may not have developed the other autoimmune disease.

2) Secondly, I LOVE the creativity involved in adapting recipes to gluten free…and the challenge of arriving at wonderful gluten free recipe options that may be even tastier than their non-gluten free counterparts! So the website has been evolving more into a foodie direction with recipes, photos of food…and even more food!

You have some lovely recipes and incredibly impacting food images on your site. Thank you!

Are they all your own recipes?

The baked donuts recipe on my blog and in my cookbook were adapted gluten free from Family Circle magazine. Most everything else is my own creation; unless specified otherwise. However, my recipes are frequently “inspired” by another gluten-containing recipe that I find elsewhere to begin with.

Do you test these recipes on or with others before publishing them?

My Gluten Free Foodie Heaven blog works GREAT for that purpose! And I have had, from time to time, volunteers from all over the country testing various recipes.

How do you go about developing a new recipe?

The process will begin with an existing recipe that contains gluten that may strike me as having great potential and appeal . Then it gradually evolves into something much more appealing than the original, in most cases. It’s like a work of art…and I don’t stop until I am happy with it. Perhaps I need to be creating a special cake for a dinner, so I find a recipe that contains gluten that I like the basic characteristics of and can use as the springboard to further develop as my own.  I enjoy the magazines “Mary Jane’s Farm” and “Country Living” a great deal and find inspiration from many of their “country-influenced” recipes.

Can you share a little bit of “Diane’s Process” please? See above.

You have created a cookbook which took over 7 years of research and development. What makes this cookbook unique?

My niche seems to be the creativity involved in all of my recipes. Very few are ordinary, and at times, I probably need to “reign in” my gourmet side a bit! The other unique aspect of my cookbook is its “home style” cooking slant. Almost everything is made from scratch and many with a country flavor.

How can someone purchase your cookbook?

My cookbook is available either at my website: www.celiacdiseaseinfo.org or at AMAZON.com: http://amzn.com/B002GQ2ZJU

On your site you offer some incredibly helpful information through a downloadable eBook. Can you share a bit about the eBook please?

My ebook is like a beginning primer on celiac disease…from its history, symptoms, diagnosis, treatment, a reference guide to gluten free foods, a section on gluten free flours, alternative gluten free grains, hidden sources of gluten, a starter guide to eating gluten free, and a bonus of a week’s worth of recipes.

You also have a blog www.glutenfreefoodieheaven.blogspot.com. Can you please share what this blog offers and how it may be different than your site?

My blog is just a lot of fun! I love sharing my recipes in this venue with others and hearing what people have to say! I also enjoy shooting the photographs
and improving my photographer’s “eye” as I build the blog.

I read you also give seminars! What are your seminars about and where can one sign up for one?

At this time, my seminars have been local to the North Arizona area. I attempt to convey to people the difference between a gluten allergy and celiac disease, but also want to assist people in how to affordably cook gluten free and wheat free for themselves or for their family. I have done gluten free cooking demos on a statewide TV program as well as some radio interviews.

Do you have any plans to offer online seminars or online cooking classes?

Not at this time, but I am currently scheduled to teach gluten free cooking classes at a local community college.

You carry the name “Gluten-Free Country Girl”. That is quite a title. Can you share with us how you acquired this name?

Honestly, it just FITS! I live in the country and love the country lifestyle, after residing in large cities most of my life. My husband and I built our passive solar home on 3 acres almost ten years ago. We have carved out a very enjoyable lifestyle in a lovely mile high community in the mountains of N. AZ. We are developing a small vineyard, orchard and a large garden, raising chickens, rabbits, and two lambs. We make a conscious effort to maintain control over what we eat and put into our bodies. Initially, this came out of necessity, in that I was ill and seemed to do better with more fresh, nutritious food. But now, when I develop a gluten free recipe, I am also passing on what I hope is the essence of the lifestyle that I love!

What makes Diane “shine” in her work in the gluten-free celiac world?

Hopefully, what I mentioned above! I sincerely hope that people enjoy my recipes and my heart for getting more helpful information out there.

If you could share one thing today, what is it you’d like to say?

Be diligent as your own health care advocate. No one can really do it for you. Listen to your intuition when you are searching for answers to your health questions. And be assertive when working with your health care practitioners!

Thank you Diane!

About Diane: Diane Jacobs was diagnosed in 2003 with celiac disease and has dedicated herself to sharing information about celiac disease and also about the benefits of eating and cooking wheat and gluten free. In 2005, Diane created her own website: http://www.celiacdiseaseinfo.org; in 2006 she self-published her first edition of her Ebook: What on Earth is a Celiac?; in 2008, her cookbook: Delicious! The Very Best of Gluten Free & Wheat Free Cooking, a Homestyle Recipe Collection for Celiacs and Wheat Sensitive Folks” was self-published both at the website and at Amazon.com: http://amzn.com/B002GQ2ZJU.

Then in 2010, she created her food blog: “Gluten Free Foodie Heaven”: http://www.glutenfreefoodieheaven.blogspot.com.

Diane speaks to community groups and organizations about celiac disease and about how to comfortably (and fabulously!) and survive as a person who either is required to or desires to eat gluten and wheat free.  She also makes appearances on TV programs cooking gluten free and has been featured in local newspaper articles as well.

Prescott, Arizona Courier article: March14th, 2010:
http://www.prescottaz.com/main.asp?SectionID=74&SubSectionID=111&TM=69298

Tina Turbin

www.GlutenFreeHelp.info

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  • Tina Turbin

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    Tina Turbin became extremely interested and involved in the subjects of gluten free, gluten sensitive and celiac disease a number of years ago as a result of...

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