There are many ways we with celiac or gluten intolerance can help others. One way is to head a group. Jane is an exceptional woman with her story and running a group for many years now. Here is her story and a link to a news article about her and her experiences. Really worth reading. Janet has recently attended my GF taste testing party to assist in my Reviews. She is FUN!
Janet Heitler joined a pre-existing group (Tampa Bay celiac Support Group) in 1995 two weeks after she was discharged from the hospital with her celiac diagnosis. She had a long time of misdiagnosis and no diagnosis. Things did not look good up to that final day of being correctly diagnosed.
Two women initially founded the group and Janet ended up in the group after they resigned from being Co-chairs. A husband and wife team took it over and I wanted to contribute because everyone was so wonderful – so Janet said she would be the Treasurer, easy to do. Everything was fine until two months into their “reign” I got a call that they were moving to Nevada. Bam – she got in 1998 and I has had it ever since.
The meeting calendar was all over the chart and the first thing she did was announce to meet on the second Saturday of every other month – Feb/Apr/Jun/Aug/Oct and Dec. We meet at 10am – 12 noon at the Jimmy Keel Library on Bears Avenue in Tampa, unless a luncheon is arranged.
They have done 2 GF Beer and Pizza Parties, when Pei Wei first opened they had a luncheon, and a luncheon at Trang’s Viet-Nam Cuisine — 90% of the menu is GF – it is not a GF restaurant it just works out like that, she says.
There are 200 people on her mailing list, but the most she has ever had at meeting (Beer/Pizza luncheon) was 70 people yet normally there are 20-25 people attending.
According to Janet, a lot of times newbie’s come once and think they know everything there is then fall aside. Then she gets a call and they talk as they are in trouble. She reminds them of the meetings and she tells them the new things that are out there and having the emails has helped people to reconnect and stay connected.
Janet’s email – firstname.lastname@example.org
Thank you Janet! Tina Turbin
From our home to yours, Miranda Jade.